Recent Posts
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The Diagnosis
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There are moments in life when everything you thought you knew about yourself shatters with a single sentence. For me, that sentence came in the form of a phone call: “The biopsy confirmed what we suspected. You have cancer.” This blog is my space to share an unfolding story, one…
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The Silver Lining of (the City of) Hope
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Moving across the country is stressful under the best of circumstances. Doing it in the midst of a cancer diagnosis and a life-changing genetic discovery? Overwhelming doesn’t even begin to cover it. When my family relocated from North Carolina to San Diego, I had no idea just how much this…
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Medical Specialist Speed Dating
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Being diagnosed with Li-Fraumeni Syndrome means re-entering the dating world – sort of. My medical tour around San Diego has evolved from a search for an oncology team to specialist speed dating, where finding the one(s) is less about romance and more about survival. It’s a whirlwind of rapid-fire Q&A,…
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Li-Fraumeni Syndrome & Me
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When I found out I had a TP53 mutation, I had no idea what it meant. TP53? Never heard of it. Li-Fraumeni Syndrome? Li – what? I didn’t know what it was, but the words ‘high cancer risk’ hit me like a slap. It felt like the floor had been…